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Chisom Pius

Founder, Rare Disease Nigeria

Chisom Pius

Founder, Rare Disease Nigeria

Title: The perception of Rare Disease in Nigeria


Chisom Pius has four years of experience in the nonprofit sector and earned a Bachelor of Science Education in Health Education from the University of Lagos, Nigeria. During her time as an undergraduate, she volunteered for various organizations like the red cross society, slum2school Africa, Crimson-bow sickle cell initiative, to mention a few. Chisom also volunteered to teach health education at the federal science and technical college, Yaba, Lagos Nigeria, she took the junior school class two students for three months. After her graduation, she worked at a digital marketing agency as a content writer and social media manager, she was responsible for managing the social media pages, creating content, and responding to customer's inquiries for a furniture company and a financial technology company. Chisom currently works as the social media analyst for an Information technology company, and she is also very passionate about rare diseases hence her decision to create Rare Disease Nigeria, a platform that advocates and creates awareness on rare diseases in Nigeria. Her leisure time is spent reading books, taking online courses in public health and digital marketing. Chisom has gained experience over the years, she looks forward to pursuing her master’s in public health to advance her career and passion in the health sector especially on rare diseases.